Autism
From Train Wreck to Train Ride - Jett's First Audition

From Train Wreck to Train Ride – Jett’s First Audition

He was a spinning, rocking, stacking, non-verbal, notoriously clever escape artist.  He refused to be in the company of strangers, fled when crowds appeared and reacted to change with uncontrollable fits of animalistic rage.  They certainly didn’t cover that in ‘What to Expect When You’re Expecting’! Never wanting children, I wasn’t one to dream of...
My Babies Ride the Short Bus

My Babies Ride the Short Bus

My babies ride the short bus, yep – the short bus.  Like myself, you may have snickered when you heard those words as a child.  I remember having visions of seeing spastic kids, wearing oversized helmets, bashing their heads into the windows, while hearing random moans and screams seeping out from inside their brightly colored,...
Everybody's Weird

Everybody’s Weird

“I hate school, I say. I’m not going back. And don’t even think you can make me.” “What happened?” Said Mom. “I thought you loved school?” “Those people don’t know how to take me! They make me sit down. They make me get up. The stories they read are so dumb. I don’t like my...
How'd He Get In There???

How’d He Get In There???

So here’s the upside – he can’t run-away.  He can’t break a vase.  He can’t be the one to blame when something goes missing.  Little consolation for having Cerebral Palsy, but hey, when you’re the little brother, and you can’t get blamed for the messy playroom that’s definitely something! I don’t have to go looking...
Who the Heck am I?

Who the Heck am I?

I asked my six-year-old son what he wanted to do with his life.  I asked him, because someone had just asked me.  And quite honestly, I didn’t know.  At 40, no one really asks me that question anymore – not seriously anyway.  This is middle age I suppose.   Aren’t we, by now, at the place...
I Have What???

I Have What???

I was just curious.  All at once it sort of hit me.  Both of my kids had a ‘diagnosis’.  Did my kids actually know what they ‘had’?  So, being me, I just asked them. “Hey Jett, do you know what your diagnosis is?” I questioned. Jett looked up at me with big, beautiful, bright blue...
Trust Me - I Wanted to Go!

Trust Me – I Wanted to Go!

Gathered around for dinner one evening my in-laws, husband and I were, as always, already discussing what we would be having for dinner the next night (not unusual for this shameless, foodie foursome) when the conversation segued to my husband’s recollection of an unforgettable hummus that they had stumbled upon during a stay in Atlantic...
Unnoticed No More

Unnoticed No More

I vividly remember the day my son Dane’s physical therapist pointed out that there was an elephant standing in the middle of our living room.  We had all been so busy concentrating on Dane’s cerebral palsy diagnosis that the adorable, curly blond headed boy, full of autistic tendencies, staring at the TV screen, spinning in...
My Maya - You have to open the door for a hero to walk in.

My Maya – You have to open the door for a hero to walk in.

I was going through some old files and came across this letter.  I wrote this letter shortly after discovering that we qualified to have a home health aide assist me in the daily care of my two special needs children. Not one to accept, or even ask for help, the thought of a stranger coming...