Cerebral Palsy
Do Good

Do Good

Last night did not go as expected AT ALL. I wrote ‘ACTION!’ five years ago – and boy were things different five years ago… I had just acted in my first play. Something I never had any ambition to do. My family graciously watched my boys so I could spend endless hours pouring myself into...
Too Good to be True

Too Good to be True

I made a promise. Through bittersweet tears, with no fear in my heart, I made a promise. Three years ago I stood in front of a hundred plus people and I promised them that I would bring them multi-generational theatre YEAR ROUND. Today I walked into an old, empty auto parts store, after four, ONLY...
Mr. Independent

Mr. Independent

My boys are in 4th and 5th grade. They had a dance tonight. I thought nothing much of it except to wonder if they’d let me take pictures (since I had to be there with Dane anyway). I mean, of course I would be there, Dane’s nine, in a wheelchair and his home health aide...
Called

Called

I hated kids – when I was one. I never babysat, because they hated me back. I had no idea that they would save me one day… but they did. I’m struggling with today. I am struggling to admit that I’m human, much less American, Midwestern, Pennsylvanian… It’s never made any difference to me AT...
Anyone Want to Start a School?

Anyone Want to Start a School?

Every year, about this time, I wander around the house, void of common sense, unable to successfully fake socially acceptable behavior or remotely control my emotions in any way. I dread the first day of school for many, many reasons. Let’s be honest. My children are not ‘normal’ by any stretch of the imagination. I...
Dinner Out...

Dinner Out…

My husband and family love food – so do I. Because I weigh nothing and eat like a bird, most people find that comment to be BS, but it’s true. I want to go out to eat. I really do. I want to try new things, taste new flavors, experience other cultures… But I have...
Boo! Hoo... :(

Boo! Hoo… :(

Yesterday my son brought home a letter stating that they were canceling Halloween at his elementary school. Needless to say, that went over like a brick. It’s no secret that I love Halloween. It’s no secret that I love my sons. You threaten to take away one, upsetting the other, and it’s no secret that...
Get it???

Get it???

It’s weird to actually ‘get’ my kids. I mean REEEAAALLY get them, but I do. It’s hard for me to bite my tongue when Jett says he refuses to work in groups. It’s excruciating to force Dane into social situations when he’d rather just hang back in his room and let the company come to...
Lucky

Lucky

I am lucky because my son, Dane, was born with cerebral palsy, yet he is healthy and, without a doubt, the person I understand, and probably understands me, the most. I am lucky because my son Jett is on the autism spectrum, which likely had a hand in making him the most creative person I...
Hope & Humor

Hope & Humor

When children require hospitalization there are a few things you should know: Upon arrival, if given the opportunity, use valet.  Hospitals have so many handicapped parking spots that even with a handicapped sticker, if you don’t arrive before the crack of dawn, you’ll wind up trudging half a mile, in the sleet (in April, uphill,...
Inside Out - More Surgery...

Inside Out – More Surgery…

My skin is on inside out.  I want to throw up.  This won’t be clever, funny or well written.  This is the truth, as I am feeling it – right now. Dane goes in for surgery tomorrow at 11:30AM (if all goes according to plan).  I am sitting at my computer typing this, in the...
Hope

Hope

More surgery.  Words you come to love and hate.  No one wants to put their child through hospital stays, anesthesia, catheterization…  No one wants their baby poked, pricked, prodded and cut. But there it is, that magic word – hope.   It floats around the recovery room like a flock of butterflies, refusing to be wrangled...